Psychological symptomatology in informal caregiver of rural and urban population
Main Article Content
Abstract
The informal caregiving has recently become a greater importance through different reasons: sociodemographic changes, modification in the family structure, access of women to the labour market, geographical dispersion… Nevertheless, caregiving coverage in people with dementia and other diseases is mainly supported by informal and family caregiving. Psychological symptomatology caregivers suffer as a consequence of caregiving tasks are influenced by several variables. Thus, burden of caregivers, physical and psychological health might be determined by factors such as health status of patient, social support received, patient relative, caring time, place of residence, among other ones.
The aim of this study was to analyse the relationship between the place of residence and psychological symptomatology, health and burden of informal caregiver of patients with dementia.
Caregivers lived in rural and urban zones of Extremadura were recruited in the study.Results showed there were not significant differences between both groups in variables related with caregiving: help support, level of dependence, caring time and perceived burden, levels of depression and in the SCL-90-R questionnaire subscales. In contrast, urban caregiver had higher levels of psychological symptomatology (GSI Index) than rural counterparts. Some variables correlated significantly with that index: health status of patient, depression level of caregiver and psychological symptomatology, being place of residence a variable that makes differences between both groups.
Place of residence is a relevant factor that should be considered in designing of actions and helpful programs to informal caregivers, in order to improve their symptomatology and health related quality of life.
Downloads
Article Details
Attribution — You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use.
NonCommercial — You may not use the material for commercial purposes.
NoDerivatives — If you remix, transform, or build upon the material, you may not distribute the modified material.
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License
References
Arango-Lasprilla, J. C., Lehan, T., Drew, A., Moreno, A., Deng, X., & Lemos, M. (2010). Health-related quality of life in caregivers of individuals with dementia from Colombia. Am J Alzheimers Dis Other Demen, 25(7), 556-561. https://doi.org/10.1177/1533317510382287
Badia, X., Lara , N., & Roset , M. (2004). Quality of life, time commiment and burden perceived by the principal informal caregiver of Alzheimer's patients. Rev. de At. Primaria, 34(4), 170-177.
Badia, X., Roset, M., Monserrat, S., Herdman, M., & Segura, A. (1999). The Spanish version of EuroQol: description and uses. Med Clin (Barc), 112(Supl 1), 79-85.
Baztán, J. J., González, J. I., & Del Ser, T. (1994). Escala de actividades de la vida diaria Evaluación neuropsicológica y funcional de la demencia, 137-164.
Bedard, M., Koivuranta, A., & Stuckey, A. (2004). Health impact on caregivers of providing informal care to a cognitively impaired older adult: rural versus urban settings. Can J Rural Med, 9(1), 15-23.
Bien, B., Wojszel, B., & Sikorska-Simmons, E. (2007). Rural and urban caregivers for older adults in Poland: perceptions of positive and negative impact of caregiving. Int J Aging Hum Dev, 65(3), 185-202.
Bover, A. (2004). Cuidadores informales de salud del ámbito domiciliario: percepciones y estrategias de cuidado ligadas al género y a la generación. Universidad de Iles Balears, Palma de Mallorca.
Byrd, J., Spencer, M., & Goins, T. (2010). Differences in caregiving. Does residence matter? Journal of Applied Gerontology, 30(4), 407-421.
Crespo, M., Lopez, J., & Zarit, S. H. (2005). Depression and anxiety in primary caregivers: a comparative study of caregivers of demented and nondemented older persons. Int J Geriatr Psychiatry, 20(6), 591-592.
Cucciare, M. A., Gray, H., Azar, A., Jimenez, D., & Gallagher-Thompson, D. (2010). Exploring the relationship between physical health, depressive symptoms, and depression diagnoses in Hispanic dementia caregivers. Aging Ment Health, 14(3), 274-282. https://doi.org/10.1080/13607860903483128
Delgado, E., Suárez, O., Del Valle, R., Valdespino, I., Sousa, Y., & G., B. (2014). Características y factores relacionados con sobrecarga en una muestra de cuidadores principales de pacientes ancianos con demencia. SEMERGEN, 40(2), 57-64.
Ehrlich, K., Bostrom, A. M., Mazaheri, M., Heikkila, K., & Emami, A. (2015). Family caregivers' assessments of caring for a relative with dementia: a comparison of urban and rural areas. Int J Older People Nurs, 10(1), 27-37. doi: 10.1111/opn.12044
Farran, C. J., Staffileno, B. A., Gilley, D. W., McCann, J. J., Yan, L., Castro, C. M., & King, A. C. (2008). A lifestyle physical activity intervention for caregivers of persons with Alzheimer's disease. Am J Alzheimers Dis Other Demen, 23(2), 132-142.
Fernandez de Larrinoa, P., Martinez, S., Ortiz, N., Carrasco, M., Solabarrieta, J., & Gomez, I. (2011). Autopercepción del estado de salud en familiares cuidadores y su relación con el nivel de sobrecarga. Psichotema, 23(3), 388-393.
Fernández de Larrinoa, P., Martínez, S., Ortiz, N., Carrasco, M., Solabarrieta, J., & Gómez, I. (2011). Autopercepción del estado de salud en familiares cuidadores y su relación con el nivel de sobrecarga. Psicothema, 23(3), 388-393.
Gobierno, E. (2006). Ley 39/2006 de Promoción de la Autonomía Personal y Atención a las personas en situación de dependencia.: Boletín Oficial del Estado.
Gonzalez, J., Derogatis, L., De las Cuevas, C., Gracia, R., Rodríguez-Pulido, F., Henry-Benítez, M., & Monterrey, A. (1989). The Spanish version of the SCL-90-R. Normative data in the general population. Clinical Psychometric Research.
Grupo de trabajo de la Guía de Práctica Clínica sobre la atención integral a las personas con enfermedad de Alzheimer y otras demencias. (2010). Guía de Práctica Clínica sobre la atención integral a las personas con enfermedad de Alzheimer y otras demencias Plan de Calidad para el Sistema Nacional de Salud del Ministerio de Sanidad, Política Social e Igualdad. Agència d’Informació, Avaluació i Qualitat en Salut de Cataluña (Ministerio de Ciencia e Innovación ed., pp. 507): Sistema Nacional de Salud del Ministerio de Sanidad, Política Social e Igualdad.
Gustaw, K., Beltowska, K., & Makara-Studzinska, M. (2008). [Dementive patients' caregivers--psychological aspect of their needs]. Przegl Lek, 65(6), 304-307.
Headquarters, S. I. (2005). SPSS (Version 13.0). Chicago: SPSS Inc.
Ho, S. C., Chan, A., Woo, J., Chong, P., & Sham, A. (2009). Impact of caregiving on health and quality of life: a comparative population-based study of caregivers for elderly persons and noncaregivers. J Gerontol A Biol Sci Med Sci, 64(8), 873-879.
Izal, M., & Montorio, I. (1996). Adaptación en nuestro medio de la Escala de Depresión Geriátrica (GDS) en distintos subgrupos: residentes en la comunidad y asistentes a hospitales de día. Revista multidisciplinar de Gerontología, 6, 329-337.
Keith, J. (2013). Burden of Care Impacting Family Caregivers of Dependent Community-Dwelling Older Adults in Rural and Urban Settings of Southern Turkey: A Mosaic of Caregiver Issues and Recommendations. Universty of Dortmund, Dortmund.
Larrañaga, I., Martín, U., Bacigalupe, A., Begiristain, J., Valderrama, M., & Arregi, B. (2008). Impacto del cuidado informal en la salud y la calidad de vida de las personas cuidadoras: análisis de desigualdades de género. Gaceta Sanitaria, 22(5), 443-450.
Marquez-Gonzalez, M., Losada, A., Izal, M., Perez-Rojo, G., & Montorio, I. (2007). Modification of dysfunctional thoughts about caregiving in dementia family caregivers: description and outcomes of an Intervention Program. Aging Ment Health(11), 616-625.
Martin, M., Salvado, I., Nadal, S., Miji, L., Rico, J., Lanz, P., & Taussing, M. (1996). Adaptation to our mean of caregiver burden scale of Zarit. Revista de Gerontología, 6(4), 338-345.
Martínez, J. (2003). Cuidados informales en España. Problema de desigualdad. Revista de Administración Sanitaria, 1(2), 275-288.
Ownby, R., Saeed, M., Wohlgemuth, W., Capasso, R., Acevedo, A., Peruyera, G., & Sevush, S. (2010). Caregiver reports of sleep problems in non-Hispanic white, Hispanic, and African American patients with Alzheimer dementia. J Clin Sleep Med., 15(6 (3)), 281-289.
Pérez, J., Abanto, J., & Labarta, J. (1996). El síndrome del cuidador en los procesos con deterioro cognoscitivo (demencia). Gaceta Sanitaria, 18(4), 194-202.
Pinquart, M., & Sorensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging, 18(2), 250-267.
Pinquart, M., & Sorensen, S. (2007). Correlates of physical health of informal caregivers: a meta-analysis. J Gerontol B Psychol Sci Soc Sci, 62(2), P126-137.
Rogero, J. (2010). Los tiempos de cuidado. El impacto de la dependencia de los mayores en la vida cotidiana de sus cuidadores. Madrid: Ministerio de Sanidad y Política Social, IMSERSO y Secretaría General Polítia Social y Consumo.
Schulz, R., Newsom, J., Mittelmark, M., Burton, L., Hirsch, C., & Jackson, S. (1997). Health effects of caregiving: the caregiver health effects study: an ancillary study of the Cardiovascular Health Study. Ann Behav Med, 19(2), 110-116.
Schulz, R., & Sherwood, P. R. (2008). Physical and mental health effects of family caregiving. Am J Nurs, 108(9 Suppl), 23-27; quiz 27.
Thomas, P., Hazif-Thomas, C., Pareault, M., & Vieban, F. C., J. P. (2010). Sleep disturbances in home caregivers of persons with dementia , 36(2), 159-165. Encephale, 36(2), 159-165.
Thomas, P., Lalloue, F., Preux, PM., Hezif-Thomas, C., Pariel, S., Inscale, R., Belmin, J., Climent, JP. (2006). Dementia patients caregivers quality of life: the PIXEL study. International Journal of Geriatrics Psychiatry, 21(1), 50-56.
Turró-Garriga, O., Soler-Cors, O., Garre-Olmo, J., López-Pousa, S., Vilalta-Franch, J., & Montsarrat-Vila, S. (2008). Distribución factorial de la carga en cuidadores de pacientes con enfermedad de Alzheimer. Revista de Neurología, 46(10), 582-588.
Vellone, E., Piras, G., Talucci, C., & Cohen, M. Z. (2008). Quality of life for caregivers of people with Alzheimer's disease. J Adv Nurs, 61(2), 222-231.