Caring for people with dementia in the home: caregiver characteristics and overload
Main Article Content
Abstract
The informal caregivers experience physical, psychological, social, emotional and financial problems, which can cause the burden of caregivers. The perceived burden by the caregiver is a subjective phenomenon that depends of internal and external factors and is also related to the caregiver himself and the tasks of caring. This work presents a systematic review about the burden thematic, related to caregivers of demented people wich purpose was identify the people with dementia’s informal caregiver characteristics associated with low and high scores of burden. The characteristics founded to be related with higher and lower burden can be summarized in eight main categories: sociodemografic variables, health and satisfaction with life, self-efficacy, personality traits, anxiety, emotional intelligence, interpersonal relationships and ways of coping. The characteristics found make it possible to establish a profile of the caregivers most likely to suffer from burden and anticipate the consequences of caregiving. Therefore, we may intervene with the caregivers in order to improve their abilities, behaviors and attitudes in the task of caring.
Article Details
Section
Attribution — You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use.
NonCommercial — You may not use the material for commercial purposes.
NoDerivatives — If you remix, transform, or build upon the material, you may not distribute the modified material.

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License
How to Cite
References
Amorim, F., Giorgion, M. & Forlenza, O. (2017). Social skills and well-being among family caregivers to patients with Alzheimer’s disease. Arch Clin Psychiatry. 44(6), 159-61.
Aperta, J. (2015). Aspetos positivos do cuidar e o apoio social percebido nos cuidadores informais de pessoas com demência. Dissertação de Mestrado. Instituto Politécnico de Bragança.
Bruvik, F., Ulstein, I., Ranhoff, A. & Engendal, K. (2013). The effect of coping on the burden in family carers of persons with dementia. Aging & Mental Health. 17(8), 973-978.
Campbell, P., Wright, J., Oyebode, J., Job, D., Crome, P. & Bentham, P. (2008). Determinants of burden in those who care for someone with dementia. Int J Geriatr Psych. 23, 1078-1085.
Chakma, P. & Goswami, H. (2016). Burden & Coping in Caregivers of Persons with Dementia. Eastern Journal of Psychiatry. 19(1)
Cheng, S., Lam, L., Kwok, T., Ng, N. & Fung, A. (2012). Self-efficacy Is Associated With Less Burden and More Gains From Behavioral Problems of Alzheimer’s Disease in Hong Kong Chinese Caregivers. The Gerontologist. 53(1), 71-80
Choi, Y. & Kim, M. (2008). The correlation between caregiver’s personality traits and caregiver burden in dementia. Dementia and neurological disorders.
Contador, I., Fernández-Calvo, B., Palenzuela, D., Miguéis, S. & Ramos, F. (2012). Prediction of burden in family caregivers of patients with dementia: A perspective of optimism based on generalized expectancies of control. Aging & Mental Health. 16(6), 675-682
Cooper, C., Katona, C., Orrell, M. & Livingston, G. (2008). Coping strategies, anxiety and depression in caregivers of people with Alzheimer’s disease. International Journal of Geriatric Psychiatry. 23, 929-936
Gallagher, D., Mhaolain, A., Crosby, L., Ryan, D., Lacey, L., Coen, R., Walsh, C., Coakley, D., Walsh, J.,Cunningham, C. & Lawlor, B. (2011). Self-efficacy for managing dementia may protect against burden and depression in Alzheimer’s caregivers. Aging & Mental Health. 15(6), 663-670
Galvis, M. & Córdoba, A. (2016). Relación entre depresión y sobrecarga en cuidadores de pacientes com demência tipo Alzheimer. Psicologia Desde el Caribe. 33(2), 190-205.
González-Abraldes, I., Millán-Calenti, J., Lorenzo-López, L. & Maseda, A. (2012). The influence of neuroticism and extraversión on the perceived burden of dementia caregivers: An exploratory study. Archives of Gerontology and Geriatrics. 56, 91-95
Huang, M., Huang, W., Su, Y., Hou, S., Chen, H., Yeh, Y. & Chen, C. (2015). Coping Strategy and Caregiver Burden Among Caregivers of Patients With Dementia. American Journal of Alzheimer’s Disease & Other Dementias. 30(7), 694-698
Iavarone, A., Ziello, A., Pastore, F., Fasanaro, A. & Poderico, C. (2014). Caregiver burden and coping strategies in caregivers of patients with Alzheimer’s disease. Neurophychiatric Disease and Treatment. 10, 1407-1413
Kim, H., Chang, M., Rose, K. & Kim, S. (2011). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing. 846-855.
Kowalska, J., Goraczko, A., Jaworska, L. & Szczepanska-Gieracha, J. (2017). An Assessment of the Burden on Polish Caregivers of Patients With Dementia: A Preliminary Study. American Journal of Alzheimer’s Disease & Other Dementias. 32(8), 509-515
Lee, J., Bakker, J., Duivenvoorden, H. & Droes, R. (2014). Multivariate models of subjective caregiver burden in dementia: A systematic review. Aging Research Reviews. 15, 76-93.
Melo, G., Maroco, J. & Mendonça, A. (2010). Influence of personality on caregiver’s burden, depression and distress related to BPSD. International Journal of Geriatric Psychiatry. 26(12), 1275-1282
Papastavrou, E., Tsangari, H., Karayiannis, G., Papacostas, S., Efstathiou, G. & Sourtzi, P. (2011). Caring and coping: The dementia caregivers. Aging & Mental Health. 15(6), 702-711.
Peeters, M., Van Beek, A., Meerveld, M., Spreeuwenberg, M. & Francke, L. (2010). Informal caregivers of persons with dementia, their use and needs for specific professional support: a survey of the National Dementia Programme. BMC Nurs. 9, 9.
Singh, S. & Gupta, P. (2018).Care Giver Burden & Assessment of Personality Profile in Primary Care Giver of Dementia of Alzheimer’s Type. International Journal of Clinical Psychiatric. 6(1), 1-8
Uei, S., Sung, H. & Yang, M. (2013). Caregivers’ Self-Efficacy And Burden Of Managing Behavioral Problems In Taiwanese Aged 65 And Over With Dementia. Social Behavior and Personality. 41(9), 1487-1496
Viñas-Diez, V., Turró-Garriga, O., Portellano-Ortiz, C., Gascón-Bayarri, J., Reñé-Ramírez, R., Garre-Olmo, J. & Conde-Sala, J. (2017). Kinship and cohabitation in relation to caregiver burden in the context of Alzheimer’s disease: a 24-month longitudinal study. Geriatric Psychiatry. 32, 72-82
Weaving, J., Orgeta, V., Orrell, M & Petrides, K. (2014). Predicting anxiety in carers of people with dementia: the role of trait emotional intelligence. International Psychogeriatrics. 26(7), 1201-1209.
Zarit, S., Todd, P., Zarit, J. (1986). Subjective burden of husband and wives as care-givers: a longitudinal study. Gerontol. Soc. Am. 26, 260–266.