Physical welfare, key dimension of the quality of life in people with autism

Article Sidebar

PDF (Español (España))
Published: Nov 19, 2017
DOI: https://doi.org/10.17060/ijodaep.2017.n1.v4.1025
Keywords:
physical well-being autism quality of life autism spectrum disorder

Main Article Content

José Luis Cuesta Gómez
Universidad de Burgos
Raquel de la Fuente Anuncibay
Universidad de Burgos
Ruth Vidriales Fernández
Confederación Autismo España
Cristina Hernández Layna
Confederación Autismo España
Marta Plaza Sanz
Confederación Autismo España
Jerónimo González Bernal
Universidad de Burgos

Abstract

From the multidimensional model of quality of life, proposed by Schalock and Verdugo, (2003), is framed Network for Quality of Life project, lead by “Autismo España”, whose aim is to determine the conditions which improve the quality of life in people with Autism Spectrum Disorder, in order to guide the development of the support services. The starting point is the analysis of every dimension of quality of life from the direct perspective of people with ASD, their families and professionals has been considered. This article focuses in the physical well-being as key dimension of the quality of life. The sample was formed by 276 people from different localities in Spain. A cross-sectional design was used with a mixed methodology of information gathering. Several validated questionnaires were used; Childhood Quality of Life Questionnaire (Sabeh, Verdugo, Prieto and Contini de González, 2009); Adolescence Quality of Life evaluation questionnaire (Gómez-Vela and Verdugo, 2009), ISMAP questionnaire - Importance and Satisfaction Map (The Council on Quality and Leadership, 1997). The information arising from families and professionals was obtained through discussion groups and questionnaires about every factor among the different dimensions. A codification and qualitative analysis of the answers was made. The results show a strategic description of conditions that favour quality of life, both objective and subjective, of people with ASD, as well as practical orientation to apply the quality of life model to the autism scope, mainly related to physical activity. Families and professionals consider physical activity as a decisive factor in quality of life, as well as health reason, enjoyment and socialization. This project represents the first wide range research on Quality of Life and ASD in Spain.

Downloads

Download data is not yet available.

Article Details

How to Cite
Cuesta Gómez, J. L., de la Fuente Anuncibay, R., Vidriales Fernández, R., Hernández Layna, C., Plaza Sanz, M., & González Bernal, J. (2017). Physical welfare, key dimension of the quality of life in people with autism. International Journal of Developmental and Educational Psychology. Revista INFAD De Psicología., 4(1), 33–44. https://doi.org/10.17060/ijodaep.2017.n1.v4.1025
Issue
Vol. 4 No. 1 (2017): Monograph No. 3. Psychology today: challenges, achievements and perspectives of the future. Attention to diversity
Section
Articles
Authors who publish with this journal agree to the following terms:
 
a. Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to copy and redistribute the material in any medium or format under the following terms:

 

Attribution — You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use.

NonCommercial — You may not use the material for commercial purposes.

NoDerivatives — If you remix, transform, or build upon the material, you may not distribute the modified material.

 
b. Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
 
c. Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work (See The Effect of Open Access).
 
The authors are responsible to obtain the appropriate permissions to reproduce material (text, images or graphics) from other publications and to quote their origin correctly.
 

References

American Psychiatric Association (APA), (2002).Manual Diagnóstico y Estadístico de los Trastornos Mentales DSM-IV-TR. Barcelona: Masson.

Autismo España (2017). Proyecto Red para la Calidad de Vida. Madrid: Autismo España.

Billestedt E, Gillberg I.C. y Gillberg C. (2011). Aspects of quality of life in adults diagnosed with autism in childhood. Autism, 15, 7-20.

Burgess, AF, Gutstein, S.E. (2007). Quality of life for people with autism: Raising the standard for evaluating successful outcomes. Child and Adolescent. Mental Health, 12, 80–86.

Castillo, I., Balaguer, I. y García, M. (2007). Efecto de la práctica de actividad física y de la participación deportiva sobre el estilo de vida saludable en la adolescencia en función del género. Revista de Psicología del Deporte, 16, (2), 201-210

Claussen, C. (2004). Using quality of life measures for programme evaluation: A review of literature. Rehabilitation on Review, 15(1), 1-5.

Cuesta, J.L., Vidriales. R. y Carvajal, F. (2016).Calidad de vida en niños y adolescentes con trastorno del espectro autista sin discapacidad intelectual. Revista de Neurología. 62 (1), 3-9.

Geurts, H.M. y Vissers, M. (2012): Elderly with autism: Executive functions and memory. Journal of Autism and Developmental Disorders, 42, 665–67.

Gómez, M., Valero, A, Peñalver, I. y Velasco, M. (2008). El trabajo de la motricidad en la clase de Educación Física con niños autistas a través de la adaptación del lenguaje Benson Schaeffer. Revista Iberoamericana de Educación, 46, 175-92.

Gómez-Vela, M. y Verdugo, M. A. (2009). Cuestionario de evaluación de la Calidad de Vida de Alumnos Adolescentes, Madrid: CEPE.

Haveman, M., Perry, J., Salvador, L., Walsh, P., Kerr, M. y Van Schrojenstein Lantman, H. (2011) Ageing and health status in adults with intellectual disabilities: results of the European Pomona II study. Journal of Intellectual and Developmental Disability, 36(1): 49–60.

Lord, C., Risi, S., Lambrecht, L. Cook, H., Leventhal, B., Dilavore, P., Pickles, A. y Rutter, M. (2000). The Autism Diagnostic Observation Schedule—Generic: A Standard Measure of Social and Communication Deficits Associated with the Spectrum of Autism. Journal of Autism and Developmental Disorders, 30, 205-223.

Judith Loveridge, J y Luanna H. y Meyer, LH. (2010). Children and young people with disabilities (Cap 6). En Loveridge J. (Edit) Involving Children and Young People in Research in Educational Settings. New Zealand: Ministry of Education.

Organización de Naciones Unidas. (2006). Convención Internacional sobre los Derechos de las Personas con Discapacidad (en línea). Recuperado de http://www.un.org/esa/socdev/enable/documents/tccconvs.pdf

Organización de Naciones Unidas (2010). Aplicación de la Convención sobre los derechos de las personas con discapacidad. Recuperado de http://www2.ohchr.org/SPdocs/CRPD/5thsession/ CRPD.C.ESP.1_sp.doc

Renty J. y Roeyers H. (2006). Quality of life in high functioning adults with autism spectrum disorders. The predictive value of disability and support characteristics. Autism, 10, 511-24.

Sabeh, E.N., Verdugo, M.A., Prieto, G. y Contini, N. (2009). Cuestionario de evaluación de la Calidad de Vida en la Infancia, Madrid: CEPE.

Shalock, R. y Verdugo, M. A. (2003). Calidad de vida. Manual para profesionales de la educación, salud y servicios sociales. Madrid: Psicología Alianza.

Schippers A. (2010). Quality of life in disability studies. Medische Antropologie, 22, 277-87 The council on quality and leadership (1997): Importance and satisfaction map. EEUU. Towson,

Vidriales, R.; Hernández, C. y Plaza, M. (2016). Envejecimiento y Trastorno del Espectro del Autismo. Madrid: Confederación Autismo España.

Webster, A. (2016). Autism, sport y physical activity Practical strategies to implement in your delivery of sport and physical activity when working with autistic people. Recuperado de file:///C:/Users/jlcgomez/Downloads/Autism-sport-and-physical-activty-booklet.pdf