Families on the wheels of conversation on education and inclusion

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Published: Nov 19, 2017
DOI: https://doi.org/10.17060/ijodaep.2017.n1.v4.1030
Keywords:
families disability education support network conversation wheel

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Maria de Fatima Minetto
Universidade Federal do Paraná
Giovanna Beatriz Medina
Universidade Federal do Paraná / FAE Centro Universitário

Abstract

This paper presents part of the activities developed by the Program for Attention to Children at Risk for Development - PRACRIANÇA (Federal University of Paraná - UFPR / Brazil). Objective: To verify the contributions of a support service to parents of children with disabilities accomplished through Conversation Circles (CC). Method: 108 mothers and 7 fathers of children with different ages and distinct diagnoses, including Autism and Down Syndrome, participated in the study. Twenty-one meetings were held between April and December 2016. Parents were asked to respond what they were looking for in the talk circle, in addition they had to describe with at least 3 words what they were thinking in the beginning and in the end of the meetings. Excel spreadsheets were used to categorize the quantitative data, that was analyzed with thematic and sequential exploration of the corpus, from Bardin (2011), which resulted in thematic categories. Results: Most of parents came to the CC to learn more about inclusion (60.1%), 52.2% were looking for strategies on how to deal with their children, 17.4% wanted orientations about healthcare professionals and 12,2% wanted to understand specific issues about the disorder, disability or diagnosis. Regarding the thoughts expressed in words at the entrance and exit of the meetings, the content analysis resulted in 6 categories. Conclusions: The CC have shown that parents come hopeful to find strategies to deal with issues related to their children. At the departure, most parents express good feelings about what they found, taking with them a greater understanding about the issues dealt there, with less sense of insecurity.

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How to Cite
Minetto, M. de F., & Medina, G. B. (2017). Families on the wheels of conversation on education and inclusion. International Journal of Developmental and Educational Psychology. Revista INFAD De Psicología., 4(1), 87–96. https://doi.org/10.17060/ijodaep.2017.n1.v4.1030
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Vol. 4 No. 1 (2017): Monograph No. 3. Psychology today: challenges, achievements and perspectives of the future. Attention to diversity
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Articles
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References

Barbieri, M.C.; Broekman, G.Van Der Zwaan; Souza, R.O.; Lima, R.A.G.; Wernet, M.; Dupas, G. (2016) Rede de suporte da família da criança e adolescente com deficiência visual: potencialidades e fragilidades. Ciênc. saúde coletiva; 21(10):3213-3223, Out.

Barbosa MAM, Pettengill MAM, Farias TL, Lemos LC. (2009) Cuidado da criança com deficiência: suporte social acessado pelas mães. Rev Gaúcha Enferm., Porto Alegre (RS) set; 30(3):406-12.

Bardin, L. (2011). Análise de conteúdo. Lisboa: Edições 70.

Bastos, O.M. Deslandes, S.F. (2008) A experiência de ter um filho com deficiência mental: narrativas de mães. Cad. saúde pública, Rio de Janeiro, v. 24, n. 9, p. 2141-2150.

Bronfenbrenner, U. (2011). Bioecologia do desenvolvimento humano: Tornando os seres humanos mais humanos. Porto Alegre: Artmed.

Bruder, M. B. (2010). Early childhood intervention: A promise to children and families for their future. Exceptional Children, 76 (3), 339-355.

Correa, W.; Minetto, M. F; Kobren, R. C.; Cunha, J. M. (2015) Risk Factors for Development of Children with Down Syndrome in Brazil. Creative Education, v. 6, n. 12, p. 1285-1293.

Couto, T. H. A. M.; Tachibana, M.; Aiello-Vaisberg, T. M. J. (2007) A mãe, o filho e a Síndrome de Down. Paidéia, v. 17, p. 265-272.

Coutinho, M. T. B. (2004). Apoio à família e formação parental. Análise psicológica, v.1, n. 22, p. 55-64.

Cruz, O. & Abreu-Lima, I. (2012). Qualidade do ambiente familiar - preditores e consequências no desenvolvimento das crianças e jovens. AMAzónica, 8, 1, 246-265.

Delvan, J. D. S., Becker, A. P. S., & Braun, K. (2010). Fatores de risco no desenvolvimento de crianças e a resiliência: Um estudo teórico. Revista de Psicologia da IMED, 2, 349-357.

Dezoti, A. P., Alexandre, A. M. C., de Souza Freire, M. H., das Mercês, N. N. A., & de Azevedo Mazza, V. (2015). Apoio social a famílias de crianças com paralisia cerebral. Acta Paulista de Enfermagem, 28(2), 172-6.

Franco, V. (2015) Introdução à intervenção precoce no desenvolvimento da criança: com a família, com a comunidade, em equipe. Évora: Edições Aloendro.

Gau, S. S.; Chiu, Y.; Soong, W.; Lee, M. Parental Characteristics, Parenting Style, and Behavioral Problems Among Chinese Children with Down Syndrome, Their Siblings and Controls in Taiwan. Journal of the Formosan Medical Association, v. 107, n. 9, p.693-703, 2008.

Guimarães, A. F. Risk of developmental delay of children aged between two and 24 months and its association with the quality of family stimulus. Rev. paul. pediatr. 2013, vol.31, n.4, pp.452-458.

Holanda, C.M.A., Andrade, F.L.J.P., Bezerra, M.A., Nascimento, J.P.S, Neves, R.F, (2015). Support networks and people with physical disabilities: social inclusion and access to health services. Ciência & Saúde Coletiva, 20(1), 175-184.

Holden, George; Geffner, Robert; Jouriles, Ernest (1998), Children Exposed to Marital Violence. Theory, research and applied issues, Washington, DC, American Psychology Association. BRASIL, L. N., & Nº, L. E. I. (2015). 13.146, DE 6 DE JULHO DE 2015. Dispõe sobre a Lei Brasileira de Inclusão da Pessoa com Deficiência. Disponível em:< http://www.planalto.gov.br/ccivil_03/Ato2015-2018/2015/Lei L,13146.

Lopes, P. E., Festas, I., & Urbano, P. (2011). Percepção de factores de risco e de proteção ao desenvolvimento infantil: O papel do educador. Revista Portuguesa de Pedagogia, 2 (45), 159-186.

Marques, M.H; Dixe, M.A.R.(2011) Crianças e jovens autistas: impacto na dinâmica familiar e pessoal de seus pais. Rev. psiquiatr. clín. Vol.38, n.2, p.66-70.

Milbrath, V. M., Cecagno, D., Soares, D. C., Amestoy, S. C., & Siqueira, H. C. H. (2008). Ser mulher mãe de uma criança portadora de paralisia cerebral. Acta paul enferm, 21(3), p.427-31.

Minetto, M. F.; Löhr, S. S. (2016) Crenças e práticas educativas de mães de crianças. Educar em Revista, Curitiba, Brasil, n. 59, p. 49-64, jan./mar.

Minetto, M. F. (2010) Práticas educativas parentais, crenças parentais, estresse parental e funcionamento familiar de pais de crianças com desenvolvimento típico e atípico. Tese (Doutorado) – Universidade Federal de Santa Catarina, Florianópolis.

Minetto, M. F.; Crepaldi, M. A.; Moreira, L. C. (2012) Práticas Educativas, estresse parental de pais de crianças pequenas com desenvolvimento atípico. Educar em Revista, Curitiba, n. 43, p. 117-132, jan./mar.

Minetto, M. F.; Crepaldi, M. A.; Martins, M. (2013) Particularidades de Famílias que têm Filhos com Deficiência Intelectual. International Journal of Developmental and Educational Psychology, v. 82, n. 1(1), p. 75-84.

Moura, A. F., & Lima, M. G. (2014). A Reinvenção da Roda: Roda de Conversa, um instrumento metodológico possível. Revista Temas em Educação, 23(1), 95-103.

OPAS - Organização Pan-Americana da Saúde, Atenção Integrada às Doenças Prevalentes na Infância, Saúde da Criança e do Adolescente, Saúde Familiar e Comunitária (2005). Manual para vigilancia do desenvolvimento infantil no contexto da AIDPI (Serie OPS/FCH/CA/05.16.P). Recuperado de: http://goo.gl/46ChiO

Pérez-López, J.; Martínez-Fuentes, M. T.; Díaz-Herrero, Á.; Nuez, A. G. B. (2012) Prevención, promoción del desarrollo y atención temprana en la Escuela Infantil. Educar em Revista, Curitiba, n. 43, p. 17-32, 2012.

Sherbourne CD, Stewart AL. (1991) The MOS social support survey. Soc Sci Med; 38(6):705- 714.

Umphered, D. A. (2011). Reabilitação neurológica. Rio de Janeiro: Elsevier. (Obra original publicada em 1985).