Knowledge and affective-sexual education congruence in people with ID
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Abstract
In education of people with intellectual disability (ID) it is important that the main agents involved (users, parents and professionals working with them) have common criteria about educational objectives in general, and especially, in sexuality. However, the three perspectives do not always coincide with the consequences of it. Taking into account the importance of identifying common needs and goals, we propose this work with the objective of knowing the degree of agreement between: 1) the knowledge that users have about sexuality and the attribution their parents and professionals made about them and 2) the opinion of parents, professionals and users on the need to provide/receive affective-sexual education. For this, 92 adults with ID (45.6% women, 54.4% men) with ages between 19 and 67 year old (M=37.5) and their parents and professionals, completed an instrument where they were asked about knowledge about sexuality and the interest of receiving training in affective-sexual education. Results indicate agreement respect to sexuality knowledge of 36.7% between parents and users and 58.4% between professionals and users. Regarding the agreement of the need to receive training in affective-sexual education, this was 75.5% between parents and users and 88.5% between professionals and users. The agreement between the three regarding this issue was high (74.7%). From these results we can conclude that professionals are better aware of the needs, skills and knowledge of the users than their own parents are but, all have in common the identification of the need to introduce in a standardized way affective-sexual education in this group.
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References
Aunos, M., & Feldman, M. A. (2002). Attitudes towards sexuality, sterilization and parenting rights of persons with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(4), 285–296. https://doi.org/10.1046/j.1468-3148.2002.00135.x
Azzopardi-Lane, C., & Callus, A. M. (2015). Constructing sexual identities: People with intellectual disability talking about sexuality. British Journal of Learning Disabilities, 43(1), 32–37. https://doi.org/10.1111/bld.12083
Byrne, G. (2017). Prevalence and psychological sequelae of sexual abuse among individuals with an intellectual disability. Journal of Intellectual Disabilities, 1–17. https://doi.org/10.1177/1744629517698844
Cuskelly, M., & Bryde, R. (2004). Attitudes towards the sexuality of adults with an intellectual disability:
parents, support staff, and a community sample. Journal of Intellectual and Developmental Disability, 29(3), 255–264. https://doi.org/10.1080/13668250412331285136
Doughty, A. H., & Kane, L. M. (2010). Teaching abuse-protection skills to people with intellectual, disabilities: A review of the literature. Research in Developmental Disabilities, 31(2), 331–337. https://doi.org/10.1016/j.ridd.2009.12.007
Evans, D. S., McGuire, B. E., Healy, E., & Carley, S. N. (2009). Sexuality and personal relationships for people with an intellectual disability. Part II: Staff and family carer perspectives. Journal of Intellectual Disability Research, 53(11), 913–921. https://doi.org/10.1111/j.1365-2788.2009.01202.x
Frawley, P., & Wilson, N. J. (2016). Young People with Intellectual Disability Talking About Sexuality Education and Information. Sexuality and Disability, 34(4), 469–484. https://doi.org/10.1007/s11195-016-9460-x
Gil-Llario, M.D., Ballester-Arnal, R. y Morell-Mengual, V. (2017). Evaluación de la sexualidad de personas con diversidad funcional en el marco de un programa de educación afectivo sexual, 3rd International Congress of Clinical and Health Psychology on Children and Adolescents, Sevilla, 18th November
Gil-Llario, M. D., Morell-Mengual, V., Ballester-Arnal, R., & Díaz-Rodríguez, I. (2018). The experience of sexuality in adults with intellectual disability. Journal of Intellectual Disability Research, 62(1), 72–80. https://doi.org/10.1111/jir.12455
Isler, A., Beytut, D., Tas, F., & Conk, Z. (2009). A study on sexuality with the parents of adolescents with intellectual disability. Sexuality and Disability, 27(4), 229–237. https://doi.org/10.1007/s11195-009-9130-3
Lafferty, A., McConkey, R., & Simpson, A. (2012). Reducing the barriers to relationships and sexuality education for persons with intellectual disabilities. Journal of Intellectual Disabilities, 16(1), 29–43. https://doi.org/10.1177/1744629512438034
Löfgren-Mårtenson, L. (2004). “May I?” About Sexuality and Love in the New Generation with Intellectual Disabilities. Sexuality and Disability, 22(3), 197–207. https://doi.org/10.1023/B:SEDI.0000039062.73691.cb
Löfgren-Mårtenson, L. (2012). “I Want to Do it Right!” A Pilot Study of Swedish Sex Education and Young People with Intellectual Disabilities. Sexuality and Disability, 30(2), 209–225. https://doi.org/10.1007/s11195-011-9239-z
McCabe, M. P., & Cummins, R. A. (1996). The Sexual Knowledge, Experience, Feelings and Needs of People with Mild Intellectual Disability. Education and Training in Mental Retardation and Developmental Disabilities, 31(1), 13–21. https://doi.org/10.2307/23879019
Povilaitiene, N., & Radzeviciene, L. (2013). Parents’ and teachers’ attitude to family planning of adolescents with mild intellectual disabilities in the context of conceptions of gender and sexuality. Social Welfare: Interdisciplinary Approach, 2(3), 8–18.
Rohleder, P. (2010). Educators’ ambivalence and managing anxiety in providing sex education for people with learning disabilities. Psychodynamic Practice, 16(2), 165–182. https://doi.org/10.1080/14753631003688100
Rojas, S., Haya, I., & Lázaro, S. (2015). Necesidades afectivo-sexuales en personas con discapacidad intelectual. Claves para construir propuestas formativas desde la experiencia subjetiva. Revista Española de Discapacidad, 2(3), 41–54.
Schaafsma, D., Kok, G., Stoffelen, J. M. T., & Curfs, L. M. G. (2014). Identifying Effective Methods for Teaching Sex Education to Individuals With Intellectual Disabilities: A Systematic Review. The Journal of Sex Research, 52(4), 412–432. https://doi.org/10.1080/00224499.2014.919373
Schwartz, R. J., & Robertson, R. E. (2018). A Review of Research on Sexual Education for Adults With Intellectual Disabilities. Career Development and Transition for Exceptional Individuals, 1–10. https://doi.org/10.1177/2165143418756609
Thompson, V. R., Stancliffe, R. J., Broom, A., & Wilson, N. J. (2014). Barriers to sexual health provision for people with intellectual disability: A disability service provider and clinician perspective. Journal of Intellectual and Developmental Disability, 39(2), 137–146. https://doi.org/10.3109/13668250.2014.898742
Thompson, V. R., Stancliffe, R. J., Broom, A., & Wilson, N. J. (2016). Clinicians’ use of sexual knowledge assessment tools for people with intellectual disability. Journal of Intellectual and Developmental Disability, 41(3), 243–254. https://doi.org/10.3109/13668250.2016.1164303