Resilience in family of people with schizophrenia: a qualitative study
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Abstract
Background: Being a family caregiver of a person with schizophrenia is a complex responsibility, which can lead to the development of tensions in the family system and, consequently, difficulties in adapting to the role of caregiver. It is essential to develop family resilience in the face of this adversity, so that they are able to recover, resist or adapt to the demands of care. Aim: To identify and explore the barriers to family resilience in family caregivers of people with schizophrenia. Methods: A qualitative design, centred on the opinions of 18 family caregivers of patients with schizophrenia who receive support from a Private Institution of Social Solidarity in the region of Lisbon and Vale do Tejo. Data were analysed using the content analysis technique. Results: The majority of participants were female (77.8%) and lived with and cared for their relative (77.8%). The role of caregiver was assumed mainly by the mother (77.8%). Barriers to family resilience broadly fall under three categories, emotional dimension, relational dimension and rational dimension, which are divided into six subcategories: self-stigmatization, expressed emotion, relational withdrawal, lack of knowledge, blame and self-blame. Conclusion: The identification of barriers to family resilience gives an insight into the difficulties experienced by caregivers, allowing health professionals to focus on these factors and implement a strategy that allows removing or minimizing their influence, enhancing the person’s abilities to achieve positive adaptation.
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