Methodology of sex education programs for people with intellectual disability: a systematic review
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Abstract
Methodology of sex education programs for people with intellectual disability: a systematic review. The methodology of the affective-sexual education programs of people with intellectual functional diversity (PDFI) to be effective in promoting a healthy, positive and satisfactory experience of their sexuality must adapt to the characteristics and needs of the collective. The available literature on the methodology used in affective-sexual education programs for PDFI and, in general, in the experimental design of the studies is scarce. The objective of this literature review is to know the design, content and learning methodology of the programs that have been implemented between 2010 and 2021. The bibliographic search was carried out with the terms “sex education”, “intellectual disability” and “program or intervention or treatment”, in the following databases: PsycoInfo, PsycArticles, ERIC, Web of Science and Google Scholar. Of the 1123 articles identified, the review articles, single case and those whose sample were not the people with intellectual disabilities themselves (e.g., parents, professionals, etc.) were excluded. Finally, only 11 met the criteria to describe the design of educational programs for PDFI. The results show that most of the interventions were implemented in heterogeneous samples, both in terms of IQ (36.6% combined people with mild and moderate disabilities) and gender (63.63% included women and men) and age (63.63% included young people and adults). Regarding the methodology used, 72.72% used game dynamics, 63.63% guided discussion and 54.54% role playing. Regarding the contents worked, the most frequent are: body parts (100%), social skills (85.7%), interpersonal relationships (85.7%); sexual assertiveness (85.7%) and prevention of sexual abuse (85.7%). We could conclude that, regardless of the approach taken, most of the studies that describe these programs lack an exhaustive description of the design, content and methodology, which hinders their replicability.
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References
Aceldo, M. A., Aguado, A. L., y Arias, B. (2006). Eficacia de un programa de educación sexual en jóvenes con discapacidad intelectual. Análisis y Modificación de Conducta, 32(142), 217-239.
Bartholomew, L. K., Parcel, G. S., Kok, G., Gottlieb, N. H., y Fernández, M. E. (2011). Planning health promotion programs: An intervention mapping approach (3rd ed.). San Francisco: Jossey-Bass.
Campos, I. (2003). Aspectos de las relaciones afectivas y sexuales en personas con disca-pacidad intelectual. Información Psicológica, 83, 15-19.
Chodan, W., Häßler, F.y Reis, O. (2017) A randomized controlled trial on the effective-ness of a sexual abuse prevention programme for girls with intellectual disabilities: study protocol. Translational Developmental Psychiatry, 5(1), 1407192, https://doi.org/10.1080/20017022.2017.1407192
Declaración Universal de los Derechos Sexuales. Declaración aprobada por la Asamblea General de la Asociación Mundial de Sexología, WAS, el 26 de agosto de 1999, en el XIV Congreso Mundial de Sexología, Hong Kong.
Fernández-García, O., Gil-Llario, M.D. y Gil-Juliá, B. (2020). Comparación entre las actitudes de las personas con discapacidad intelectual hacia la conducta sexual y las de sus padres. International Journal of Developmental and Educational Psychology, 1(1), 497–506. ISSN: 0214-9877. Disponible en: https://www.redalyc.org/articulo.oa?id=349863388049
Finlay, W. M. L., Rohleder, P., Taylor, N., y Culfear, H. (2015). “Understanding” as a practical issue in sexual health education for people with intellectual disabilities: A study using two qualitative methods. Health Psychology, 34(4), 328–338. https://doi.org/10.1037/hea0000128
Frawley, P. y Wilson, N. J. (2016). Young people with intellectual disability talking about sexuality education and information. Sexuality and Disability, 34(4), 469-484. https://doi.org/10.1007/s11195-016-9460-x
Gil-Llario, M. D., Ballester-Arnal, R., Caballero-Gascón, L., y Escalera, C. (2019). Pro-grama SALUDIVERSEX. Programa de educación afectivo-sexual para adultos con diversidad funcional intelectual. Madrid: Pirámide.
Gil-Llario, M.D., Ballester-Arnal, R., Morell-Mengual, V., Caballero-Gascón, L. y Cas-tro-Calvo, J. (2020). Development and Psychometric Properties of the Detection of Sexual Abuse Risk Screening Scale (DSARss). Sexual Abuse, 32(7), 850 –877. https://doi.org/10.1177/1079063219858061
Gil-Llario, M.D., Díaz-Rodríguez, I. y Ballester-Arnal, R. (2021). La salud sexual en personas con diversidad funcional intelectual: realidad, recursos para su evalua-ción e intervención y análisis de casos. Madrid: Paraninfo.
Gil-Llario, M.D., Estruch-García, V. y Fernández-García, O. (2021a). Efecto del juego vs. el role playing en la implicación de los participantes del programa SALUDIVER-SEX. International Journal of Developmental and Educational Psychology, 1 (3) https://doi.org/10.17060/ijodaep.2021.n1.v3.2138
Gil-Llario, M.D., Estruch-García, V. y Fernández-García, O. (2021b). Resultados preli-minares de la eficacia del programa SALUDIVERSEX de educación afectivo-sexual para adultos con diversidad funcional intelectual. International Journal of Develop-mental and Educational Psychology, 1 (1), 425-434. https://doi.org/10.17060/ijdaep.2021.n1.v1.2080
Gil-Llario, M. D., Morell-Mengual, V., Ballester-Arnal, R., & Díaz-Rodríguez, I. (2018). The experience of sexuality in adults with intellectual disability. Journal of Intellectual Disability Research, 62 (1), 72-80. https://doi.org/https://doi.org/10.1111/jir.12455
Grieveo, A., McLaren, S., and. Lindsay, R.W. (2006). An evaluation of research and training resources for the sex education of people with moderate to severe learning disabilities, British Journal of Learning Disabilities, 35, 30–37. https://doi.org/10.1111/j.1468-3156.2006.00401.x
Gutiérrez-Bermejo, B., Flores, N., Amor, P. J. y Jenaro, C. (2021). Evidence of an Im-plemented Training Program in Consensual and Responsible Sexual Relations for People with Intellectual Disabilities, International Journal of Environmental Re-search and Public Health., 18, 2323. https://doi.org/10.3390/ijerph18052323
Hayashi, M., Arakida, M. y Ohashi, K. (2011) The effectiveness of a sex education pro-gram facilitating social skills for people with intellectual disability in Japan. Journal of Intellectual and Developmental Disability, 36 (1), 11-19, https://doi.org/10.3109/13668250.2010.549463
Kelly, G., Crowley, H. y Hamilton, C. (2009) Rights, sexuality and relationships in Ire-land: ‘It’d be nice to be kind of trusted’. British Journal of Learning Disabilities 37, 308–15.
Kijak, R. (2013) The sexuality of adults with intellectual disability in Poland. Sexuality and Disability, 31, 109–23. https://doi.org/10.1007/s11195-013-9294-8
López, F. (2002). Sexo y afecto en personas con discapacidad. Madrid: Biblioteca Nueva.
Morell-Mengual, V., Gil-Llario, M.D., Díaz-Rodríguez, I. y Ballester-Arnal, R. (2021). Sexualidad en diversidad funcional intelectual: recopilación de los instrumentos de evaluación del equipo SALUSEX. Internacional Journal of Developmental an Edu-cational Psychology, 1 (3), pp. 00. DOI: https://doi.org/10.17060/ijodaep.2021.n1.v3.2032
Navarro, Y., Torrico, E., y López, M. J. (2010). Programa de intervención psicosexual en personas con discapacidad intelectual. Educación y Diversidad, 4(2), 75–92. ISSN: 1888-4857, https://dialnet.unirioja.es/servlet/articulo?codigo=3276492
Organización Mundial de la Salud. (2018). La salud sexual y su relación con la salud reproductiva: un enfoque operativo. Recuperado de: 9789243512884-spa.pdf (who.int)
Parra, N. y Oliva, M. (2015) Sexualidades diversas. Manual para la atención de la diversidad sexual en personas con discapacidad intelectual o del desarrollo. FEAPS Canarias.
Roden, R. C., Schmidt, E. K., y Holland-Hall, C. (2020). Sexual health education for adolescents and young adults with intellectual and developmental disabilities: recommendations for accessible sexual and reproductive health information. The Lancet Child y Adolescent Health, 4(9), 699–708. https://doi.org/10.1016/S2352-4642(20)30098-5
Rushbrooke, E., Murray, C., y Townsend, S. (2014). The Experiences of Intimate Rela-tionships by People with Intellectual Disabilities: A Qualitative Study. Journal of Applied Research in Intellectual Disabilities, 27, 531–541. https://doi.org/10.1111/jar.12091
Schaafsma, D., Kok, G., Stoffelen, J. M. T., y Curfs, L. M. G. (2015) Identifying Effec-tive Methods for Teaching Sex Education to Individuals With Intellectual Disabili-ties: A Systematic Review. Journal of Sex Research, 52(4), 412-432, https://doi.org/10.1080/00224499.2014.919373
Schaafsma, D., Kok, G., Stoffelen, J. M. T., y Curfs, L. M. G. (2017). People with intel-lectual disabilities talk about sexuality: Implications for the development of sex edu-cation. Sexuality and Disability, 35(1), 21-38. https://doi.org/10.1007/s11195-016-9466-4
Sigafoos, J., O’Reilly, M., y Green, V.A. (2007) Communication difficulties and the promotion of communication skills. In A. Carr, G. O’Reilly, P. Noonan Walsh y J. McEvoy (Eds.), The handbook of intellectual disability and clinical psychology practice. London: Routledge.
Stobbe, K. J., Scheffers, M., van Busschbach, J.T. y Didden R. (2021): Prevention and Intervention Programs Targeting Sexual Abuse in Individuals with Mild Intellectual Disability: A Systematic Review. Journal of Mental Health Research in Intellectual Disabilities, 14 (2), 135-158. DOI: 10.1080/19315864.2021.1883780
Swango-Wilson, A. (2011). Meaningful sex education programs for individuals with Intellectual/Developmental disabilities. Sexuality and Disability, 29(2), 113-118. http://dx.doi.org/10.1007/s11195-010-9168-2
Tomsa, R., Gutu, S., Cojocaru, D., Gutiérrez-bermejo, B., Flores, N., y Jenaro, C. (2021). Prevalence of sexual abuse in adults with intellectual disability: Systematic review and meta-analysis. International Journal of Environmental Research and Public Health, 18(4), 1-17. https://doi.org/10.3390/ijerph18041980
van den Toren, S. J., de Haas, S., Dalmijn, E., Feenstra, H., y van Berlo, W. (2021). A mixed methods evaluation of Girls' Talk+: A sexuality education programme for girls with mild intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 1–10. https://doi.org/10.1111/jar.12933
Verdugo M. A., Alcedo M. A., Bermejo B. y Aguado A. L. (2002) El abuso sexual en personas con discapacidad intelectual. Psicothema, 14, 124–9.
Vizcaino, L., y Aciego, R. (2015). Assessment of emotional-sexual education experience for people with intellectual disabilities. Siglo Cero, 46(4), 45-58. https://doi.org/10.14201/scero20154644558
Wells J., Clark K. y Sarno K. (2012) A computer-based interactive multimedia program to reduce HIV transmisión for women with intelectual disability Journal of Intellec-tual Disability Research, 56(4), 371-381. https://doi.org/10.1111/j.1365-2788.2011.01482.x
Wells J., Clark K. y Sarno K. (2014) An interactive multimedia program to prevent HIV transmission in men with intellectual disability. American Journal on Intellectual and Developmental Disabilities, 119(3), 276–86. https://doi.org/10.1352/1944-7558-119.3.276
Yueh-Ching, C., Zxy-Yann, J. L., Bo-Wei, C.y Chwen-Jen, L. (2020) Awareness of Sexual Rights and Empowerment: Quantitative and Qualitative Evaluation of a Sexu-al Health Intervention for Adults with Intellectual Disability, The Journal of Sex Re-search, 57(9), 1202-1216, https://doi.org/10.1080/00224499.2019.1629383