The nurse and the family of the child with Autism Spectrum Disorder

Article Sidebar

PDF (Português (Portugal))
Published: May 5, 2018
DOI: https://doi.org/10.17060/ijodaep.2018.n1.v3.1274
Keywords:
autistic disorder family nurse’s role

Main Article Content

Dulce María Pereira García Galvão
(Pós Doutoramento em Enfermagem, Professora Coordenadora na Escola Superior de Enfermagem de Coimbra - ESEnfC - Coimbra, Portugal)
Cátia Salomé Simões Marques
(Licenciatura em Enfermagem, Escola Superior de Enfermagem de Coimbra - ESEnfC - Coimbra, Portugal)
Dulce Natália Cunha Teixeira
(Licenciatura em Enfermagem, Escola Superior de Enfermagem de Coimbra - ESEnfC - Coimbra, Portugal)
Mariana Patricia Gonçalves Cunha
(Licenciatura em Enfermagem, Escola Superior de Enfermagem de Coimbra - ESEnfC - Coimbra, Portugal.) Escola Superior de Enfermagem de Coimbra. Avenida Bissaya Barreto, apartado 55. CEP 3001-901. Coimbra, Portugal.

Abstract

The Autism Spectrum Disorders (ASD), global disturbances of child development, has an incidence of 4-5 per 10,000 births, prevalence in males (ratio of 4: 1), presents in three levels of severity that interfere in the life of the child, with impact on family dynamics and operation. Objectives: Knowing how the nursing appointment with the family of the child with ASD develops, identifying what the nurses assess and which care plans they develop when they assist the child’s family; understanding the difficulties of the nurses in the nursing appointment as well as the relationship they establish with the child’s family. Methods: Integrative Literature Review, to answer the question “At which aspects are the nurses attentive in the nursing appointment when they assist the family of the child with ASD?”. Bibliographic search in databases Psychology and Behavioral Sciences Collection, MEDLINE, CINAHL Plus, MedicLatina, ERIC, Science Citation Index Expanded, SciVerse ScienceDirect, PMC, SCielo and Google Académico, selecting studies from 2009 to May/2015 in Portuguese, English and Spanish, using the descriptors “nurse”; “nursing”; “family”; “autism”; “autism spectrum disorder”; “knowledge” and the corresponding words in Portuguese. Seven articles were included. Results: The Nurses focus their actuation on the child, they assess the child development and the family knowledge about the disorder, identifying the family needs. The care plan is focused on the child, specifically, in which concerns to the routines and ritualized activities, without family specificities. The difficulties of the nurses are related to the lack of knowledge about the disorder and to the approach to the family. The relationship of the nurse with the family is based on trust, understanding and acceptance. The nurse plays a role of socializer and educator. Conclusion: The Nurses do not feel prepared to deal with the family, requiring training. They must direct their practices to the needs of parents and brothers.

Downloads

Download data is not yet available.

Article Details

How to Cite
Pereira García Galvão, D. M., Simões Marques, C. S., Cunha Teixeira, D. N., & Gonçalves Cunha, M. P. (2018). The nurse and the family of the child with Autism Spectrum Disorder. International Journal of Developmental and Educational Psychology. Revista INFAD De Psicología., 3(1), 279–286. https://doi.org/10.17060/ijodaep.2018.n1.v3.1274
Issue
Vol. 3 No. 1 (2018): PSYCHOLOGY AND CURRENT VALUES
Section
Articles
Authors who publish with this journal agree to the following terms:
 
a. Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to copy and redistribute the material in any medium or format under the following terms:

 

Attribution — You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use.

NonCommercial — You may not use the material for commercial purposes.

NoDerivatives — If you remix, transform, or build upon the material, you may not distribute the modified material.

 
b. Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
 
c. Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work (See The Effect of Open Access).
 
The authors are responsible to obtain the appropriate permissions to reproduce material (text, images or graphics) from other publications and to quote their origin correctly.
 

References

Althoff, C., Renck, L., Sakae S. (2005). Famílias de criança que necessitam de cuidados especiais: o impacto sobre a vida familiar. Família, saúde e desenvolvimento: Curitiba, 7(3), 221-229.

APA. (2013). DSM 5: Diagnostic and statistical manual of mental disorders (5th ed.). England. American Psychiatric Publishing

Carniel, E. L., Saldanha, L. B., Fensterseifer, L. M. (2010). A atuação do enfermeiro frente à criança autista. Pediatria (São Paulo), 32(4), 255-260.

Carniel, E. L., Saldanha, L. B., Fensterseifer, L. M. (2011). Proposta de um plano de cuidados para crianças autistas. Pediatria (São Paulo), 33(1), 4-8.

Coelho, M., Santo, A. (2006). Autismo: Perda de contacto com a realidade exterior. (Acção de Formação nº 07/2006) Centro de Formação Contínua de Professores de Ourique, Castro Verde, Aljustrel e Almodôvar, Portugal.

Dartora, D. D., Mendieta, M. C., Franchini, B. (2014). A equipa de enfermagem e as crianças autistas. Journal of Nursing and Health, 4(1), 27-38.

Fávero, M. A. B., Santos M. A. (2005). Autismo Infantil e estresse familiar: uma revisão sistemática da literatura. Psicologia: Reflexão e Crítica, 18(3), 358-369.

Gonçalves, A. (2011). Os modelos de intervenção são eficazes para melhorar a inclusão de crianças com autismo (Dissertação de Mestrado). Escola Superior de Educação Almeida Garret, Portugal.

Hall, H., Graff, J. C. (2010) Parenting Challenges in families of children with autism: a pilot study. Issues in Compreensive Pediatric Nursing, 33, 187-204.

Martins, C. P. (2012). Face a face com o autismo: será a inclusão um mito ou uma realidade? (Dissertação de Mestrado). Escola Superior de Educação João de Deus, Portugal.

Ministério da Saúde. (2013). Programa Nacional de Saúde Infantil e Juvenil. DGS. Monteiro, C. F., Batista, D. O., Moraes, E. G., Magalhães, T. S., Nunes, B. M., Moura, M.

E. (2008). Vivências maternas na realidade de ter um filho autista: uma compreensão pela enfermagem. Revista Brasileira de Enfermagem, 61(3), 330-350.

Moreira, N. (2010). O cuidar do portador de autismo e seus familiares: uma abordagem mutiprofissional. Revista de pesquisa: cuidado é fundamental online, 2, 271 – 274.

Nogueira, M. A. A., Martins do Rio, S. C. M. (2011). A família com criança autista: Apoio de Enfermagem. Revista Portuguesa de Enfermagem de Saúde Mental, 5, 16-20.

Nunes, S. C., Souza, T. Z., Giunco, C. T. (2009). Autismo: Conhecimento da equipe de enfermagem. CuidArte Enfermagem, 3(2), 134-141.

Ordem dos Enfermeiros (2014). A criança com autismo. Jornal da Madeira.Recuperado de http://www.ordemenfermeiros.pt/sites/madeira/informacao/Paginas/artigos2014.aspx Pinto, J. P., Ribeiro, C. A., Pettengill, M. M., Balieiro, M., M. (2010). Cuidado centrado na família e sua aplicação na enfermagem pediátrica. Revista Brasileira de Enfermagem, 63(1),132-135.

Portaria nº 306-A/2011. Diário da República nº 242 de 20 de Dezembro de 2011, I Série.

Ministério das Finanças e da Saúde. Lisboa, Portugal.

Will, D., Barnfather, J., Lesley, M. (2013). Self-Perceived Autism Competency of Primary Care Nurse Practitioners. The Journal for Nurses Practitioners, 9(6), 350-351.

Zanatta, E. A., Menegazzo E., Guimaraes, A. E., Ferraz L., Motta, M. G. C. (2014). Cotidiano de famílias que convivem com o autismo infantil. Revista Baiana de Enfermagem, 28(3), 271-282.