Sexuality in intellectual functional diversity: compilation of evaluation instruments of the Salusex team
Main Article Content
Abstract
The sexuality of people with intellectual disabilities (ID) is a controversial issue. Their sexuality is characterised by myths and false beliefs that have restricted their right to achieve the experience of a free sexuality. In some cases, their sexuality was equated with that of children, as asexual people; and in other cases, a lack of control over their impulses was assumed, trying not to awaken their sexual instincts. In 2015, SALUSEX team initiated the study of sexuality in this group with a project, funded by the Ministry of Economy and Competitiveness, related to the quality of life and sequelae of sexual abuse. Taking into consideration the needs detected, this project was followed by another, currently under development, with the aim of developing and analysing the effectiveness of a programme to prevent abuse and improve sexual health. In this project, some psychometric instruments are being developed and validated to collect information about their knowledge, beliefs and experiences in both self-reported and other-reported. The aim of this paper is to present some instruments to assess the sexuality in the field of intellectual functional diversity, developed by Salusex team.
Downloads
Article Details
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Attribution — You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use.
NonCommercial — You may not use the material for commercial purposes.
NoDerivatives — If you remix, transform, or build upon the material, you may not distribute the modified material.
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License
References
AAIDD (2011). Discapacidad Intelectual. Definición, Clasificación y Sistemas de Apoyo Social. Alianza Editorial. American Psychiatric Association. (2014). DSM-5. manual diagnóstico y estadístico de los trastornos mentales. Editorial Medica Panamericana.
Bagozzi, R. P., & Yi, Y. (2011). Specification, evaluation, and interpretation of structu-ral equation models. Journal of the Academy of Marketing Science, 40(1), 8-34. http://doi.org/10.1007/s11747-011-0278-x
Bazzo, G., Nota, L., Soresi, S., Ferrari, L., & Minnes, P. (2007). Attitudes of Social Ser-vice Providers towards the Sexuality of Individuals with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 20(2), 110-115. https://doi.org/10.1111/j.1468-3148.2006.00308.x
Borawska-Charko, M., Rohleder, P., & Finlay, W. M. L. (2017). The sexual health kno-wledge of people with intellectual disabilities: A review. Sexuality Research and So-cial Policy, 14(4), 393-409. https://doi.org/10.1007/s13178-016-0267-4
Franco, D. G., Cardoso, J., & Neto, I. (2012). Attitudes towards affectivity and sexuali-ty of people with intellectual disability. Sexuality and Disability, 30(3), 261-287. https://doi.org/10.1007/s11195-012-9260-x
Gil-llario, M. D, Elipe-Miravet, M., Giménez-García, C., Bisquert-Bover, M. y Castro-Calvo, J. (2019). Validación de un instrumento de evaluación del comportamiento sexual de personas con discapacidad intelectual para padres (ECS-PA). Internatio-nal Journal of Developmental and Educational Psychology, 1(4), 519-528. https://doi.org/10.17060/ijodaep.2019.n1.v5.1634
Gil-Llario, M. D., Ballester-Arnal, R., Fernández-García, O. y Morell-Mengual, V. (2020). La evaluación de la sexualidad de las personas con discapacidad intelectual: construcción y descripción de una entrevista semiestructurada. International Jour-nal of Developmental and Educational Psychology, 1(1), 379-392. https://doi.org/10.17060/ijodaep.2020.n1.v1.1795
Gil-Llario, M. D., Ballester-Arnal, R., Morell-Mengual, V., Caballero-Gascón, L. y Cas-tro-Calvo, J. (2020). Development and psychometric properties of the detection of sexual abuse risk screening scale (DSARss). Sexual Abuse 32(7), 850-877. https://doi.org/10.1177%2F1079063219858061
Gil-Llario, M. D., Castro-Calvo, J., Fernández-García, O., Elipe-Miravet, M. y Ballester-Arnal, R. (2021). Estimating sexual knowledge of people with mild intellectual di-sability through a valid and reliable assessment scale: the ISK-ID. Journal of Ap-plied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12909
Gil-Llario, M. D., Flores-Buils, R., Elipe-Miravet, M., Fernández-García, O. y Ballester-Arnal, R. (en revisión). Development and psychometric properties of a self-reported instrument for the Assessment of Sexual Behaviour and Concerns of people with Mild Intellectual Disabilities (SEBECOMID-S) Journal of Applied Research in Inte-llectual Disabilities.
Gil‐Llario, M. D., Morell‐Mengual, V., Díaz‐Rodríguez, I. y Ballester‐Arnal, R. (2019). Prevalence and sequelae of self‐reported and other‐reported sexual abuse in adults with intellectual disability. Journal of Intellectual Disability Research, 63(2), 138-148. https://doi.org/10.1111/jir.12555
Gil-Llario, M. D., Morell-Mengual, V., Fernández-García, O., Castro-Calvo, J. y Balles-ter-Arnal, R. (2020). Development and psychometric properties of an instrument for the Assessment of Sexual Behaviour and Knowledge of people with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12823
Gil-Llario, M. D, Fernández-García, O., Castro-Calvo, J., Caballero-Gascón y Ballester-Arnal, R. (2021). Validation of a Tool to Assess Attitudes Towards Sexuality of Individuals with Intellectual Disability (ASEXID): A Preliminary Study. Sexuality and Disability 39, 147-165. https://doi.org/10.1007/s11195-020-09650-3
Liou, W. (2014). An illustrated scale measuring the Sexual‐Abuse prevention knowledge of female high school students with intellectual disabilities in taiwan. Sexuality and Disability, 32(2), 135-151. https://doi.org/10.1007/s11195-013-9312-x
Löfgren-Mårtenson, L., Sorbring, E., & Molin, M. (2015). “T@ ngled up in blue”: Views of parents and professionals on internet use for sexual purposes among young people with intellectual disabilities. Sexuality and Disability, 33(4), 533-544. https://doi.org/10.1007/s11195-015-9415-7
Olavarrieta, S., Darín, L., Suárez, P., Tur, N., Besteiro, B., & Gómez-Jarabo, G. (2013). Actitudes hacia la sexualidad, esterilización, maternidad/paternidad y habilidades de crianza de personas con discapacidad intelectual: Un estudio preliminar. Siglo Cero, 44(4), 55-69.
Oliva, L. & Calderón, M. (2010). Elaboración de una escala de actitudes respecto a la sexualidad de personas con discapacidad mental. Revista Electrónica de Psicología Iztacala 13(4), 106-115.
Siebelink, E. M., de Jong, M. D., Taal, E., & Roelvink, L. (2006). Sexuality and people with intellectual disabilities: Assessment of knowledge, attitudes, experiences, and needs. Mental Retardation, 44(4), 283-294. https://doi.org/10.1352/0047-6765(2006)44[283:SAPWID]2.0.CO;2
Tamas, D., Jovanovic, N. B., Rajic, M., Ignjatovic, V. B., & Prkosovacki, B. P. (2019) Professionals, Parents and the General Public: Attitudes Towards the Sexuality of Persons with Intellectual Disability. Sexuality and Disability 37, 245-258. https://doi.org/10.1007/s11195-018-09555-2