Siblings of children with autism spectrum disorder
Main Article Content
Abstract
Background: Autism Spectrum Disorders (ASD) affect the child’s interaction, communication, and behavior, profoundly changing the family environment.
Objectives: To understand what it means to be the sibling of a child with ASD. Participants and Methods: Exploratory descriptive study, using a qualitative methodology, with 11 siblings of children with ASD with semi-structured interviews, conducted in October and November/2013, and data analysis proposed by Bardin.
Results: Four themes emerged: the child and the sibling’s diagnosis, the child and the sibling with ASD, the child and the parents, and the child and the others. Conclusions: Being the sibling of a child with ASD is a unique experience. Some negative aspects are related to the attention given by the parents, with this being one of the most significant needs felt by siblings of children with ASD. Nurses should intervene with parents, alerting them to the fact that the attention given to their children is one of the greatest needs expressed by the children.
Downloads
Article Details
Attribution — You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use.
NonCommercial — You may not use the material for commercial purposes.
NoDerivatives — If you remix, transform, or build upon the material, you may not distribute the modified material.
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License
References
Altiere, M. J. (2006). Family functioning and coping behaviors in parents of children with autism.Retrivedfrom http:// commons. emich. Edu /cgi/ viewcontent.cgi?article=1053&context= theses
American Psychiatric Association. (2000). Manual diagnóstico e estatístico de perturbações mentais: D.S.M. IV -TR : Texto revisto (1ª ed.). Lisboa, Portugal: Climepsi.
Araujo, R. R., Souza-Silva, J. R., & D’ Antino, M. E. (2012. Breve discussão sobre o impacto de se ter um irmão com transtorno do espectro do autismo. Cadernos de Pós- GraduaçaoemDisturbios do Desenvolvimento, 12(1), 9-15.
Assumpção, F. B., & Sprovieri, M.H. (2000). Introdução ao estudo da deficiência mental. São Paulo, Brasil: Memnon.
Bagenholm, A., &Gillberg, C. (1991). Psychosocial effects on siblings of children with autism and mental retardation: A population-based study. Journal of Mental Deficiency Research, 35(4), 291-307.
Bosa, C., & Gomes, V. (2004). Estresse e relações familiares na perspectiva de irmãos de indivíduos com transtornos globais de desenvolvimento. Estudos de Psicologia , 9(3), 553-561. Recuperado de http://www.scielo.br/pdf/epsic/v9n3/a18v09n3.pdf
Caldeira, P. (2003). Programa clínico para o tratamento das perturbações da relação e da comunicação baseado no modelo D.I.R. Análise Psicológica, 21(1), 31-39.
Crowe, T. K. , Vanleit, B., Berghmans, K. K., & Mann, P. (1997). Role perceptions of mothers with young children: The impact of a child’s disability. The American Journal of Occupational Therapy, 51(8), 651-661.
Favero, M. P., & Santos, M. A. (2005).Autismo infantil e estresse familiar: Uma revisão sistemática da literatura. Psicologia: Reflexao e Crítica, 18(3), 358-369. Recuperado de http://www.scielo. br/pdf/prc/v18n3/a10v18n3
Gadia, C. A., Tuchman, R., & Rotta, N.T. (2004). Autismo e doenças invasivas do desenvolvimento. Jornal de Pediatria, 80(2sup.), S83-S94.Recuperado de http://www.scielo.br/pdf/jped/v80n2s0/v80n2Sa10.pdf
Glat, R., & Duque, R. (2003). Convivendo com filhos especiais: O olhar paterno. Rio de Janeiro, Brasil: Sete Letras.
Harris, S., & Glasberg, B. (2003). Siblings of children with autism: A guide for families (2ª ed.). Bethesda, USA: Woodbine House.
Hastings, R.P. (2003). Behavioral adjustement of siblings of children with autism. Journal of Autism and Developemental Disorders, 33(2), 99-104. Retrieved from http://dcautismparents.org/yahoo_site_admin/assets/docs/ABA_9.9261235.pdf
Kamins, L., & Dewey, D. (2001). Siblings relationships of children with autism. Journal of Autism and Developemental Disorders, 31(4), 399-410. Retrived from http://link.springer.com/article/ 10.1023%2FA%3A1010664603039#page-1
Macks, J., & Reeve, E. (2006).The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developemental Disorders, 37(6), 1060-1067. Recuperado de http://download.springer.com/static/pdf/461/art%253A10.1007% 52Fs10803-006- 02490.pdf originUrl=http%3A%2F%2Flink.springer.com%2Farticle%2F10.1007%2Fs10803-00602490&token2=exp=1437574540~acl=%2Fstatic%2Fpdf%2F461%2Fart%25253A10.100% 25252Fs10803-006-02490.pdf%3For iginUr l%3Dht tp%253A%252F%252Fl ink. springer.com%252Farticle%252F10.1007%252Fs10803-00602490*~hmac=f1a1259cb87c8ae866591c43b8dbea7d642e8ed8792e555b519006f21420d783
Roeyers H, Mycke K. Siblings of a child with autism, with mental retardation and with a normal development. Child Care Health Dev. 1995 Sep;21(5):305-319.
Sharpe D, Rossiter L. Siblings of children with chronic illness: a meta-analysis. J Pediatr Psychol. 2002;27(8):699-710.
Siegel, B. (2008). O Mundo da criança com autismo: Compreender e tratar perturbações do espectro do autismo. Porto, Portugal: Porto Editora.
Verte, S., Roeyers, H., & Buysse, A. (2003). Behavioral problems, social competence and self conception on siblings of children with autism. Child: Care Health and Development, 29(3), 193- 205. Retrieved from http://onlinelibrary.wiley.com/doi/10.1046/j.1365-2214.2003.00331.x/full
Wright, B., & Williams, C. (2008). Convivendo com autismo e síndrome de asperger: Estratégias práticas para pais e profissionais. São Paulo, Brasil: M. Books do BrasilEditora.